PriMera Scientific Medicine and Public Health (ISSN: 2833-5627)

Comprehensive Review

Volume 9 Issue 5

Share the Care Systems: Empowering Women Caregivers of Children Living with HIV and AIDS in Rural Malawi through Process Innovation

Mandayachepa Nyando*

November 11, 2026

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Abstract

Eighty-five percent of the population lives in rural areas of Malawi, and over 12% currently live with human immunodeficiency virus (HIV) and acquired immunodeficiency syndrome (AIDS). Approximately 88, 000 children are living with HIV and AIDS (Nutor et al., 2020). In response, the Malawian government's clinical approach and HIV/AIDS policy place a special emphasis on children's health (Malawi Government, 2018). As a result, every child receiving clinical services is tested for HIV and AIDS. Maternal and female care are not given top attention in screening or treatment programs. The health of women and children in Malawi may be affected by this policy. That is, because a child's survival depends on the health and well-being of their mother or other primary caregivers, their chances for a fulfilling life are interdependent (Mabetha, De Wet-Billings, et al., 2023).

References

  1. Ameh S., et al. “Paradox of HIV stigma in an integrated chronic disease care in rural South Africa: Viewpoints of service users and providers”. PLOS ONE 15.7 (2020): e0236270.
  2. Asa GA., et al. “Psychological, sociocultural and economic coping strategies of mothers or female caregivers of children with a disability in Belu district, Indonesia”. PLOS ONE 16.5 (2021): e0251274.
  3. Atanuriba GA., et al. “Caregivers’ Experiences with Caring for a Child Living with HIV/AIDS: A Qualitative Study in Northern Ghana”. Global Pediatric Health 8 (2021): 2333794X211003622.
  4. Bazzano AN., et al. “Human-centred design in global health: A scoping review of applications and contexts”. PLOS ONE 12.11 (2017): e0186744.
  5. Gardiner C., et al. “Equity and the financial costs of informal caregiving in palliative care: a critical debate”. BMC Palliative Care 19 (2020): 71.
  6. Hendery S. “Second Population Survey Assessing HIV in Malawi Shows Progress Toward Epidemic Control”. PHIA Project (2022).
  7. Joint United Nations Programme on HIV/AIDS (UNAIDS). “AIDSInfo: Global Data on HIV Epidemiology and Response”. UNAIDS, New York (2020).
  8. Kumar S., et al. “Stigma towards dependent drinking and its role on caregiving burden: A qualitative study from Goa, India”. Drug and Alcohol Review 41.4 (2022): 778-786.
  9. Leslie M., et al. “The care capacity goals of family carers and the role of technology in achieving them”. BMC Geriatrics 20.1 (2020): 52.
  10. Mabetha D., et al. “Realising radical potential: building community power in primary health care through Participatory Action Research”. International Journal for Equity in Health 22.1 (2023): 94.
  11. Mabetha K, De Wet-Billings NC and Odimegwu CO. “Exploring the effect of kin caregivers’ family functioning on child survival in South Africa: An application of the Family Systems Theory”. Child & Family Social Work (2023).
  12. Malawi Government. “Malawi Clinical Guidelines”. Ministry of Health, Lilongwe (2018).
  13. Malawi Ministry of Health. “Malawi HIV Testing Service Guidelines”. Ministry of Health, Lilongwe (2016).
  14. Mujjuzi I., et al. “Care Burden and Coping Strategies among Caregivers of Paediatric HIV/AIDS in Northern Uganda: A Cross-Sectional Mixed-Method Study”. AIDS Research and Treatment 2021 (2021): 6660337.
  15. Namasaba M., et al. “Broadening the scope of social support, coping skills and resilience among caretakers of children with disabilities in Uganda: a sequential explanatory mixed-methods study”. BMC Public Health 22.1 (2022): 690.
  16. National Statistical Office - NSO/Malawi and ICF. “Malawi Demographic Health Survey”. NSO and ICF, Zomba, Malawi (2017).
  17. National Statistical Office - NSO/Malawi and ICF Macro. “Demographic and Health Survey 2010”. NSO/Malawi and ICF Macro, Zomba, Malawi (2011).
  18. Nutor JJ., et al. “Spatial analysis of factors associated with HIV infection in Malawi: indicators for effective prevention”. BMC Public Health 20.1 (2020): 1n-14.
  19. Ozcan O, Hoelterhoff M and Wylie E. “Faith and spirituality as psychological coping mechanism among female aid workers: a qualitative study”. Journal of International Humanitarian Action 6.1 (2021): 15.
  20. Parkinson M, Carr SM and Abley C. “Facilitating social coping-‘seeking emotional and practical support from others’-as a critical strategy in maintaining the family care of people with dementia”. Health & Social Care in the Community 30.2 (2022): 558-569.
  21. Pasipamire L., et al. “Retention on ART and predictors of disengagement from care in several alternative community-centred ART refill models in rural Swaziland”. Journal of the International AIDS Society 21.9 (2018): e25183.
  22. Penning MJ and Wu Z. “Caregiver Stress and Mental Health: Impact of Caregiving Relationship and Gender”. The Gerontologist 56.6 (2016): 1102-1113.
  23. Phillips R., et al. “The impact of caring for family members with mental illnesses on the caregiver: a scoping review”. Health Promotion International 38.3 (2023): daac049.
  24. Pollack Porter KM, Rutkow L and McGinty EE. “The Importance of Policy Change for Addressing Public Health Problems”. Public Health Reports 133.1 Suppl (2018): 9S-14S.
  25. Steen M, Manschot M and De Koning N. “Benefits of co-design in service design projects”. International Journal of Design 5.2 (2011): 53-60.
  26. Szlamka Z., et al. “The role of advocacy and empowerment in shaping service development for families raising children with developmental disabilities”. Health Expectations 25.4 (2022): 1882-1891.
  27. United States Agency for International Development. “Malawi HIV/AIDS Factsheet”. Washington DC (2021).
  28. Ward A., et al. “Three Perspectives on the Experience of Support for Family Caregivers in First Nations Communities”. Diseases 11.1 (2023): 47.
  29. Watson J. “The theory of Human Caring: retrospective and prospective”. Nursing Science Quarterly 10.1 (1997): 49-52.
  30. Worthington C., et al. “A qualitative study of community-based HIV/AIDS prevention interventions, programs, and projects for rural and remote regions in Canada: Implementation challenges and lessons learned”. Journal of Public Health Management and Practice: JPHMP 26.1 (2020): E28-E37.
  31. Yang J., et al. “Interventions and strategies to improve social support for caregivers of children with chronic diseases: An umbrella review”. Frontiers in Psychiatry 13 (2022): 973012.